A framework for creating standardized outcome measures for patient registries. (September 2014)

• Record Type: Journal Article
• Authors: Gliklich, Richard E; Leavy, Michelle B; Karl, Jannette; Campion, Daniel M; Levy, Daniel; Berliner, Elise
• Is Part Of: Journal of comparative effectiveness research. Volume 3:Number 5(2014)
• Page Start: 473
• Page End: 480
• Publication Date: 2014-09
• Subjects: comparative effectiveness research -- conceptual model -- outcome measure -- outcome measurement -- patient outcomes -- patient registry; Medical care -- Research -- Periodicals; Medical care -- Research -- Evaluation -- Periodicals; Medical care -- Decision making -- Periodicals; Evidence-based medicine -- Periodicals; Medicine, Comparative -- Periodicals; 362.1072
• DOI: 10.2217/cer.14.38
• Languages: English
• ISSNs: 2042-6305

Abstract

Aim: Our objectives were to create a conceptual framework for development of standard outcome measures and to design and pilot test a tool for displaying outcome measures.Materials & methods: Information on outcome measures used in registries was gathered through stakeholder discussions, which informed the development of the outcome measurement framework and the related tool.Results: The outcome measurement framework is a conceptual model for how information relevant to evaluating patient outcomes may be defined and collected in a standard way for a broad range of health areas. The related tool facilitates collecting, displaying and searching for information on outcome measures.Conclusion: The model developed through this process offers a framework that can be used to define outcome measures in a standard way across medical conditions.