Overview of the ChILD Research Network: A roadmap for progress and success in defining rare diseases. Issue 7 (13th June 2020)

• Record Type: Journal Article
• Authors: Casey, Alicia M.; Deterding, Robin R.; Young, Lisa R.; Fishman, Martha P.; Fiorino, Elizabeth K.; Liptzin, Deborah R.
• Is Part Of: Pediatric pulmonology. Volume 55:Issue 7(2020)
• Page Start: 1819
• Page End: 1827
• Publication Date: 2020-06-13
• Subjects: interstitial lung disease (ILD); Pediatric respiratory diseases -- Periodicals; Pediatrics -- Periodicals; 618.922
• DOI: 10.1002/ppul.24808
• Languages: English
• ISSNs: 8755-6863

Abstract

Abstract: Children's interstitial and diffuse lung diseases are a diverse group of rare lung disorders that present in childhood with diffuse pulmonary infiltrates and respiratory signs and symptoms. Children with these disorders face high morbidity and mortality and their families must cope with overwhelming uncertainty. Physicians caring for these patients are challenged by a paucity of directed therapies, or even understanding of natural history. Through the establishment of the Children's Interstitial Lung Disease Foundation Research Network and the Children's Interstitial Lung Disease Foundation significant progress has been made through collaboration and research. This review outlines the past and current successes in the new and rapidly growing field of Children's Interstitial and Diffuse Lung Disease.