Disease Self-Efficacy and Health-Related Quality of Life in Adolescents With Sickle Cell Disease. Issue 2 (March 2020)

• Record Type: Journal Article
• Authors: Goldstein-Leever, Alana; Peugh, James L.; Quinn, Charles T.; Crosby, Lori E.
• Is Part Of: Journal of pediatric hematology/oncology. Volume 42:Issue 2(2020)
• Publication Date: 2020-03
• Subjects: health-related quality of life -- disease self-efficacy -- adolescents and young adults -- sickle cell disease; Pediatric hematology -- Periodicals; Tumors in children -- Periodicals; 618.9215
• DOI: 10.1097/MPH.0000000000001363
• Languages: English
• ISSNs: 1077-4114

Abstract

Abstract : Adolescents and young adults (AYA) with sickle cell disease (SCD) are at risk for poor health-related quality of life (HRQOL). Research suggests that vulnerability factors (eg, disease severity) and self-management resources (eg, disease self-efficacy) jointly impact health outcomes, including HRQOL; however, this has not been studied among AYA with SCD. This study examined the relationship between disease self-efficacy, HRQOL, and disease severity in AYA with SCD. HRQOL was positively correlated with disease self-efficacy and negatively correlated with disease severity. Disease self-efficacy and severity accounted for 35% of variance in HRQOL. Findings support the impact of disease self-efficacy on HRQOL.