The Long Shadow: Collateral Impact and Finding Resilience Amidst a Global Pandemic Pediatric Palliative Care Social Work During COVID-19. Issue 2 (3rd July 2021)

• Record Type: Journal Article
• Authors: Jonas, Danielle Faye; Drouin, Kristin; Greenman, Jennifer; Klein, Victoria; Scanlon, Caitlin; Frechette, Eleanor; Cramer, Lauren; Eagan, Arielle; Rusch, Rachel; Joselow, Marsha; Purol, Nicholas
• Is Part Of: Journal of social work in end-of-life & palliative care. Volume 17:Issue 2/3(2021)
• Page Start: 218
• Page End: 236
• Publication Date: 2021-07-03
• Subjects: Bereavement -- decision-making -- pediatric palliative care -- self-care -- social work; Social work with the terminally ill -- Periodicals; Social work with older people -- Periodicals; Social Work -- Periodicals; Terminal Care -- psychology -- Periodicals; Palliative Care -- psychology -- Periodicals; 362.175
• DOI: 10.1080/15524256.2021.1894312
• Languages: English
• ISSNs: 1552-4256

Abstract

Abstract: This manuscript illuminates the nuanced ways in which the COVID-19 pandemic has impacted the pediatric palliative care social work role and clinical care in caring for children with life-limiting illnesses and their families throughout the country. The authors discuss memorable moments, logistical impacts, telehealth usage, decision-making experiences, end of life care, bereavement practices, specialized interventions, and self-care. The paper concludes with lessons learned and practical recommendations for the future.