Systemic lupus erythematosus on social networking sites: Friends or foes?. (October 2021)

• Record Type: Journal Article
• Authors: Dima, Alina; Abida, Rym; Sadovici-Bobeica, Victoria; Delcea, Caterina
• Is Part Of: Lupus. Volume 30:Number 12(2021)
• Page Start: 1873
• Page End: 1878
• Publication Date: 2021-10
• Subjects: Systemic lupus -- erythematosus -- Social media -- Twitter -- Facebook; Systemic lupus erythematosus -- Periodicals; 616.772005
• DOI: 10.1177/09612033211038053
• Languages: English
• ISSNs: 0961-2033

Abstract

Systemic lupus erythematosus (SLE) is one of the most studied autoimmune diseases. The interest shown for this pathology is translated into international scientific journals, congresses, meetings and, recently, in large data available online. Social networking sites (SNS) have gradually advanced from ways to facilitate interpersonal relations to important sources of information, including medical data regarding SLE, with sites largely accessed by both doctors and patients. Albeit the use of SNS can be valuable in providing education and promoting development of public health, it can be misleading if unprofessional sources of information are used; therefore, both "friends and foes" of the data accessed on large scale should always be considered. This viewpoint is a discussion of the potential benefits and harms related to the SNS use for SLE patients as well as for their physicians.