Research in progress: put the orphanage out of business. Issue 10 (21st February 2013)

• Record Type: Journal Article
• Authors: Bush, Andrew; Anthony, Gisela; Barbato, Angelo; Cunningham, Steve; Clement, Annick; Epaud, R; Gilbert, Carlee; Goldbeck, Lutz; Kronfeld, Kai; Nicholson, Andrew G; Schwerk, Nicolaus; Griese, Matthias
• Is Part Of: Thorax. Volume 68:Issue 10(2013)
• Page Start: 971
• Page End: 973
• Publication Date: 2013-02-21
• Subjects: PIG -- ABCA3 -- Allergic Alveolitis -- Paediatric interstitial lung disease -- NEHI -- Surfactant protein -- Pulmonary vasculitis; Chest -- Diseases -- Periodicals; Thorax; Chest -- Diseases; Periodicals; Periodicals; 617.54
• DOI: 10.1136/thoraxjnl-2012-203201
• Languages: English
• ISSNs: 0040-6376

Abstract

Abstract : Paediatric interstitial lung disease (ILD) is rare and diverse, meaning no single centre will see sufficient children to perform the studies needed to make progress. This EU FP-7 grant will standardise the evaluation of these rare conditions by establishing pan-European multidisciplinary expert panels and establish consensus on treatment protocols and standard operating procedures across Europe. We will work with patient groups to determine optimal treatment end-points and biomarkers. A biobank will be established as a Europe-wide resource for mechanistic studies. Ultimately we aim to do the first randomised controlled trial of a pharmacological treatment in paediatric ILD.