G425(P) Mental well-being support for nicu parents – a uk survey. (May 2019)

• Record Type: Journal Article
• Authors: Storey, C; Shetty, P; Leppard, L; Gupta, N
• Is Part Of: Archives of disease in childhood. Volume 104:(2019)Supplement 2
• Page Start: A172
• Page End: A173
• Publication Date: 2019-05
• Subjects: Children -- Diseases -- Periodicals; Infants -- Diseases -- Periodicals; 618.920005
• DOI: 10.1136/archdischild-2019-rcpch.410
• Languages: English
• ISSNs: 0003-9888

Abstract

Abstract : Background: NICU parents are at high risk of developing anxiety, depression and post-traumatic stress disorder. This can have detrimental effect on parental health, relationships and later development of the baby. Early identification of parents in need of psychosocial support and further provision of low-level psychological interventions by a Neonatal Mental Health Professional (NMHP) can be a preventive strategy. Currently there is no standardised national psychosocial framework for NICU. The aim of this study was to establish the current provision of psychosocial support in Level-III NICUs in the UK and inform the development of a UHS framework to support NICU parents' mental well-being. Methods: An online national survey of all Level-III Neonatal units was conducted to establish the modelling of psychosocial support services. A UHS NICU staff survey was conducted simultaneously to ascertain resources required for staff to facilitate the psychosocial framework. Finally, a parental survey was conducted to canvass their views on the provision of emotional support. Results: 70% of neonatal units have dedicated NMHP but variability was seen both in number and type of staff providing the service. Provision of supportive groups with therapeutic intervention also showed variation. Screening tools for parental well-being is used only in 5 units (15%) but even between these units variation exists. 50% of neonatal units had information around psychosocial issues and resources available to parents in parent information leaflets. Lack of dedicated educational staff session on parental psychosocial issues was evident, along with variation in psychosocial support for the staff supporting parents in these intense environments. Parents echoed the need for more emotional and mental health support not only during their NICU stay but also post discharge. The majority of parents were open to taking part in a screening process. Conclusion: The surveys highlight the need for a robust, standardised service supporting the mental and emotional well-being of parents in NICUs across the UK. The results are being used to inform the development of a framework for such a support service, including early identification of those at risk using a well-being screening tool. It is hoped that this data will help in the development of much needed national guidance.