Idiopathic intracranial hypertension: consensus guidelines on management. Issue 10 (14th June 2018)

• Record Type: Journal Article
• Authors: Mollan, Susan P; Davies, Brendan; Silver, Nick C; Shaw, Simon; Mallucci, Conor L; Wakerley, Benjamin R; Krishnan, Anita; Chavda, Swarupsinh V; Ramalingam, Satheesh; Edwards, Julie; Hemmings, Krystal; Williamson, Michelle; Burdon, Michael A; Hassan-Smith, Ghaniah; Digre, Kathleen; Liu, Grant T; Jensen, Rigmor Højland; Sinclair, Alexandra J
• Other Names: Anderson Jane author non-byline.; Goadsby Peter J author non-byline.; Matthews Timothy D author non-byline.; Hoffmann Jan author non-byline.; O'Sullavin Eoin author non-byline.; Shah Pushkar author non-byline.
• Is Part Of: Journal of neurology, neurosurgery and psychiatry. Volume 89:Issue 10(2018)
• Page Start: 1088
• Page End: 1100
• Publication Date: 2018-06-14
• Subjects: headache -- benign intracran hyp -- clinical neurology -- neuroophthalmology -- neurosurgery; Neurology -- Periodicals; Nervous system -- Surgery -- Periodicals; Psychiatry -- Periodicals; 616.8
• DOI: 10.1136/jnnp-2017-317440
• Languages: English
• ISSNs: 0022-3050

Abstract

Abstract : The aim was to capture interdisciplinary expertise from a large group of clinicians, reflecting practice from across the UK and further, to inform subsequent development of a national consensus guidance for optimal management of idiopathic intracranial hypertension (IIH). Methods: Between September 2015 and October 2017, a specialist interest group including neurology, neurosurgery, neuroradiology, ophthalmology, nursing, primary care doctors and patient representatives met. An initial UK survey of attitudes and practice in IIH was sent to a wide group of physicians and surgeons who investigate and manage IIH regularly. A comprehensive systematic literature review was performed to assemble the foundations of the statements. An international panel along with four national professional bodies, namely the Association of British Neurologists, British Association for the Study of Headache, the Society of British Neurological Surgeons and the Royal College of Ophthalmologists critically reviewed the statements. Results: Over 20 questions were constructed: one based on the diagnostic principles for optimal investigation of papilloedema and 21 for the management of IIH. Three main principles were identified: (1) to treat the underlying disease; (2) to protect the vision; and (3) to minimise the headache morbidity. Statements presented provide insight to uncertainties in IIH where research opportunities exist. Conclusions: In collaboration with many different specialists, professions and patient representatives, we have developed guidance statements for the investigation and management of adult IIH.