Development of a dyadic sleep intervention for Alzheimer's disease patients and their caregivers. Issue 13 (19th June 2021)

• Record Type: Journal Article
• Authors: Song, Yeonsu; McCurry, Susan M.; Lee, Diane; Josephson, Karen R.; McGowan, Sarah Kate; Fung, Constance H.; Irwin, Michael R.; Teng, Edmond; Alessi, Cathy A.; Martin, Jennifer L.
• Is Part Of: Disability and rehabilitation. Volume 43:Issue 13(2021)
• Page Start: 1861
• Page End: 1871
• Publication Date: 2021-06-19
• Subjects: Behavioral sleep intervention -- Alzheimer's disease -- family caregiver -- dyadic approach; People with disabilities -- Periodicals; Rehabilitation -- Periodicals; 617.03
• DOI: 10.1080/09638288.2019.1680748
• Languages: English
• ISSNs: 0963-8288

Abstract

Abstract: Purpose: This study aimed to refine a behavioral sleep intervention program targeting patients with Alzheimer's disease and their caregivers. Methods: In this case series, key components of the sleep program were built upon previous intervention studies of patients with cognitive impairment/dementia. The intervention consisted of five weekly sessions covering sleep hygiene, sleep compression, stimulus control, daily walking/light exposure, relaxation/mindfulness, and caregiver training to manage patients' behavioral problems. The materials and structure were iteratively refined based on feedback from caregivers and sleep educators. Sleep diaries were used to evaluate sleep outcomes. Results: Five out of six enrolled dyads completed the sessions. Several revisions were made during testing: the last session was changed from telephone to in-person; some components (e.g., sleep scheduling, mindfulness) were rearranged within or across sessions; sleep educator guidelines for sleep scheduling, light exposure, and walking were revised. After the fifth dyad, no additional issues were identified by the caregiver or the sleep educator. Four patients and three caregivers had improved sleep at the last session. Conclusions: The iterative refinement process was successful in finalizing the intervention program, with evidence of sleep improvements. Formal pilot testing of the program will provide further information on feasibility and effectiveness. IMPLICATIONS FOR REHABILITATION: Our dyadic behavioral sleep program can be tailored to various types of sleep problems among patients with Alzheimer's disease and their family caregivers, with the goal of improving daytime function by reducing sleep disturbances at night. Caregiver training and participation of both members of the dyad in sleep management may benefit the patients' sleep and other health outcomes, reduce caregiver stress and burden, and ultimately delay or prevent institutionalization of Alzheimer's disease patients.