An electronic health record-based strategy to recruit for a Patient Advisory Council for Research: Implications for inclusion. Issue 1 (25th February 2020)

• Record Type: Journal Article
• Authors: Bougrab, Nassira; Li, Dadong; Trachtman, Howard; Sherman, Scott; Thornton, Rachel; Langford, Aisha T.
• Is Part Of: Journal of clinical and translational science. Volume 4:Issue 1(2020)
• Page Start: 69
• Page End: 72
• Publication Date: 2020-02-25
• Subjects: Patient participation, -- electronic health records, -- International Classification of Diseases, -- medical informatics; Clinical medicine -- Research -- Periodicals; Medicine, Experimental -- Periodicals; Human experimentation in medicine -- Periodicals; 616.027
• DOI: 10.1017/cts.2019.433
• Languages: English
• ISSNs: 2059-8661

Abstract

Abstract: In 2017, the NYU Clinical and Translational Science Institute's Recruitment and Retention Unit created a Patient Advisory Council for Research (PACR) to provide feedback on clinical trials and health research studies. We collaborated with our clinical research informatics team to generate a random sample of patients, based on the International Classification of Diseases, Tenth Revision codes and demographic factors, for invitation via the patient portal. This approach yielded in a group that was diverse with regard to age, race/ethnicity, sex, and health conditions. This report highlights the benefits and limitations of using an electronic health record-based strategy to identify and recruit members for a PACR.