Gender and the experiences of living with mesothelioma: A thematic analysis. (June 2021)

• Record Type: Journal Article
• Authors: Ejegi-Memeh, Stephanie; Robertson, Steve; Taylor, Bethany; Darlison, Liz; Tod, Angela
• Is Part Of: European journal of oncology nursing. Volume 52(2021)
• Publication Date: 2021-06
• Subjects: Gender -- Mesothelioma -- Men -- Women -- Qualitative -- Thematic analysis; Cancer -- Nursing -- Periodicals; Cancer -- Research -- Periodicals; Oncology -- Periodicals; Oncology Nursing -- Periodicals; Neoplasms -- nursing -- Periodicals; Cancer -- Soins infirmiers -- Périodiques; Cancer -- Recherche -- Périodiques; Cancérologie -- Périodiques; Verpleegkunde; Kanker; Cancer -- Nursing; Cancer -- Research; Oncology; Electronic journals; Periodicals; Electronic journals; 616.9940231
• DOI: 10.1016/j.ejon.2021.101966
• Languages: English
• ISSNs: 1462-3889

Abstract

Abstract: Purpose: Mesothelioma is a terminal cancer caused by exposure to asbestos. As a cancer with a higher rate in men than women, women's experiences of living with mesothelioma are often underexplored. Furthermore, men's experiences are often taken for granted and therefore have remained underexplored. This paper considers men's and women's experiences across the mesothelioma pathway. Methods: This qualitative study incorporated semi-structured interviews with 13 men and 11 women living with mesothelioma. Telephone interviews took place between July and December 2019, and were audio recorded, transcribed and anonymised. Thematic analysis was used to analyse the data. Results: Three themes were developed in relation to the gendered experience of mesothelioma: familial responsibility and social perceptions; support preferences; and treatment and trials. Analysis suggests that men and women's sense of familial responsibility varied. Differences in priorities and motivations influenced approaches to seeking support, compensation and, making decisions around treatments and clinical trials. Conclusions: The current study reports on how gender can influence the experience of living with mesothelioma. The findings indicate how the patients' role in their families and society can more broadly influence their experiences, choices and preferences. Nurses caring for mesothelioma patients need high quality research on which to base their practice. Recognition and an understanding of the underlyingfactors influencing patients' decision-making will enable nurses and other professionals to support their patients better. Highlights: Emotional and financial responsibilities influence patients' priorities and motivations. Gendered social norms may influence patients' discussions with professionals. Impact on family and a sense of control influences treatment and trial decisions. Care and time is required to identify patients' wishes regarding treatment and support. Some men and women may prefer smaller and single sex support groups.