Concerns and Needs of Patients With Head and Neck Cancer in the COVID-19 Era. Issue 3 (September 2021)

• Record Type: Journal Article
• Authors: Yan, Flora; Rauscher, Erika; Hollinger, Amanda; Caputo, Mary Ann; Ready, John; Nguyen, Shaun A.; Fakhry, Carole; Nathan, Cherie-Ann O.; Leonardis, Chris; Yearout, Danielle; Day, Terry A.; Moore, Michael G.
• Is Part Of: OTO open. Volume 5:Issue 3(2021)
• Publication Date: 2021-09
• Subjects: COVID-19 -- head and neck cancer support; Otolaryngology -- Periodicals; Otolaryngology; Electronic journals; Periodicals; 617.51
• DOI: 10.1177/2473974X211047794
• Languages: English
• ISSNs: 2473-974X

Abstract

Objective: To evaluate the concerns and needs of patients and survivors of head and neck cancer (HNC) in the COVID-19 era. Study Design: Prospective cross-sectional survey. Setting: Contact lists of 5 North American HNC advocacy groups. Methods: A 14-question survey was distributed to the contact lists of 5 HNC advocacy groups evaluating patient and survivor needs and concerns related to their cancer care and COVID-19. Results: There were 171 respondents, with 75% in the posttreatment period. The most common concern was contraction of COVID-19 (49%). More patients in active treatment preferred in-person visits than those in the early (≤5 years) and late (>5) survivorship period (72% vs 61% vs 40%, P < .001). A higher percentage of late survivors preferred virtual visits (38% vs 28%, P = .001). In total, 91 (53.2%) respondents sought emotional support outside of immediate family and friends. This included cancer support groups (36.2%), the medical team (29.7%), and other sources outside of these (34.1%), including faith-based organizations and online communities. A higher proportion of women than men (62% vs 41%, P = .001) were seeking emotional support outside of immediate family and friends. Conclusions: During the early stages of the COVID-19 pandemic, patients with HNC who were actively undergoing treatment had increased need for support resources and preferred in-person provider visits. Alternatively, a higher percentage of patients >5 years from treatment preferred virtual visits. Emotional support outside of family and friends was sought out by a majority of respondents. Further research is needed to determine what support and educational resources are needed to best aid these various populations.