Cognitive functioning in everyday life: The development of a questionnaire on instrumental activities of daily living in multiple sclerosis. Issue 3 (August 2021)

• Record Type: Journal Article
• Authors: van Dam, Maureen; Sikkes, Sietske AM; Rammeloo, Emma; Reinders, Evy; Jelgerhuis, Julia R; Geurts, Jeroen JG; Uitdehaag, Bernhard MJ; Hulst, Hanneke E
• Is Part Of: Multiple sclerosis journal, experimental, translational and clinical. Volume 7:Issue 3(2021)
• Publication Date: 2021-08
• Subjects: Multiple sclerosis -- cognition -- instrumental activities of daily living -- Amsterdam IADL Questionnaire -- MS-IADL-Q; Multiple sclerosis -- Periodicals; 616.834
• DOI: 10.1177/20552173211038027
• Languages: English
• ISSNs: 2055-2173

Abstract

Neuropsychological test scores in people with MS (PwMS) do not fully reflect cognitive functioning in daily life. Therefore, we developed a questionnaire based on instrumental activities of daily living (IADL), using the Amsterdam IADL-Q © for Alzheimer's disease as starting point. Forty-eight items were evaluated on relevance and clarity by (inter)national experts (n = 30), PwMS (n = 61) and proxies (n = 30). Consequently, four items were omitted, two items were merged and seven items were added. Fifty items were included in the IADL questionnaire specific to cognitive functioning in MS (the MS-IADL-Q). Future studies are warranted to assess the psychometric properties of the MS-IADL-Q.