"Kicking and Screaming" or "Gracefully Conceding": Creative Nonfiction Stories of Aging With Multiple Sclerosis. (August 2021)

• Record Type: Journal Article
• Authors: Richardson, Emma V.; Motl, Robert W.
• Is Part Of: Qualitative health research. Volume 31:Number 10(2021)
• Page Start: 1861
• Page End: 1874
• Publication Date: 2021-08
• Subjects: aging -- multiple sclerosis -- experiences -- qualitative -- chronic illness -- pluralistic analysis -- creative nonfiction -- United States; Health -- Periodicals; Health behavior -- Periodicals; Health -- Research -- Methodology -- Periodicals; Health behavior -- Research -- Methodology -- Periodicals; 610.7205
• DOI: 10.1177/10497323211009864
• Languages: English
• ISSNs: 1049-7323

Abstract

Aging with multiple sclerosis (MS) is a complex phenomenon. Some individuals report physical and cognitive dysfunctions regarding these combined experiences, whereas others report perceived improvements in quality of life. Beyond this, little is known regarding how people make sense of, and come to embody, negative or positive experiences of MS. Thus, our objectives were to (a) explore how people made sense of aging with MS and (b) present this in an artful, engaging, transformative way. To achieve this, we conducted 40 semi-structured interviews with older adults who had MS, analyzed data using pluralistic narrative analyses, and presented results through two creative nonfictions. We detail our process of creating the nonfictions before presenting the different stories of aging with MS, namely "Kicking and Screaming" and "Gracefully Conceding." We then offer recommendations and implications for using these stories as knowledge translation devices, and further critique the limitations of these stories in practice.