Communicating with parents of children with trisomy 13 or 18 who seek cardiac interventions. (19th March 2021)
- Record Type:
- Journal Article
- Title:
- Communicating with parents of children with trisomy 13 or 18 who seek cardiac interventions. (19th March 2021)
- Main Title:
- Communicating with parents of children with trisomy 13 or 18 who seek cardiac interventions
- Authors:
- Weaver, Meaghann S.
Lantos, John
Hauschild, Kelly
Hammel, James
Birge, Nicole
Janvier, Annie - Abstract:
- Abstract: This case report shares the story of a family who sought care elsewhere after their daughter was denied cardiac surgery in their home state because she had trisomy 18. This case report recommends case-by-case assessment of cardiac surgical interventions for children with trisomy 13 or 18 as informed by review of goals, assessment of comorbidities, and literature-informed practice. Coordinated care planning and interdisciplinary communication are relevant in cardiac surgical considerations for children with these underlying genetic conditions.
- Is Part Of:
- Cardiology in the young. Volume 31:Number 3(2021)
- Journal:
- Cardiology in the young
- Issue:
- Volume 31:Number 3(2021)
- Issue Display:
- Volume 31, Issue 3 (2021)
- Year:
- 2021
- Volume:
- 31
- Issue:
- 3
- Issue Sort Value:
- 2021-0031-0003-0000
- Page Start:
- 471
- Page End:
- 475
- Publication Date:
- 2021-03-19
- Subjects:
- Trisomy 13, -- trisomy 18, -- communication, -- paediatric palliative, -- cardiology
Pediatric cardiology -- Periodicals
618.9212 - Journal URLs:
- http://journals.cambridge.org/action/displayJournal?jid=CTY ↗
- DOI:
- 10.1017/S1047951120004023 ↗
- Languages:
- English
- ISSNs:
- 1047-9511
- Deposit Type:
- Legaldeposit
- View Content:
- Available online (eLD content is only available in our Reading Rooms) ↗
- Physical Locations:
- British Library STI - ELD Digital Store
- Ingest File:
- 16823.xml