Conference Scene: Direct-to-consumer genetic testing in the age of personalized medicine. (November 2009) - Borry, Pascal
This article provides a meeting report from the 5th International DNA Sampling Conference, ''The Age of Personal Genomics'', which took place in Banff (Canada) on 16––18 September 2009. Most of the contributions that focused on offering genetic tests directly to consumers are presented in this report. In particular, we summarize presentations on various topics: inaccurate or misleading claims that are being made by direct-to-consumer genetic testing companies; the role of medical professionals in this regard; the motivations of users to purchase personal genome services or to use genetic tests; genetic testing in minors by direct-to-consumer companies; consent forms and privacy statements of these companies; the regulatory oversight of these activities; and prospects of the evolution of this market.