Assessing clinical education tools for expanded carrier screening. Issue 2 (1st November 2020)

• Record Type: Journal Article
• Authors: Dugger, Chloe; Anderson, Hannah S.; Miller, Christine E.; Wong, Bob; Johnson, Erin P.; Rothwell, Erin
• Is Part Of: Journal of genetic counseling. Volume 30:Issue 2(2021)
• Page Start: 606
• Page End: 615
• Publication Date: 2020-11-01
• Subjects: carrier screening -- counseling techniques -- decision making -- education -- genetic counseling -- population screening; Genetic counseling -- Periodicals; 616.042
• DOI: 10.1002/jgc4.1349
• Languages: English
• ISSNs: 1059-7700

Abstract

Abstract: Expanded carrier screening (ECS) is increasingly offered to a broader population and raises challenges of how to best educate and counsel the volume of screened individuals. For this study, we compared three educational tools (brochure, video and comic) about ECS on knowledge and decision making. A convenience online sample of 151 pregnant women was randomized to one of three groups (Video, n = 42; Comic n = 54; Brochure n = 55). Knowledge scores were significantly higher for the comic group compared to the video or the brochure groups ( p < .001). No significant differences in preparation for decision making, decisional conflict, or perceptions of shared decision making were identified between the study groups. This study suggests that a comic about ECS may improve patient attention and retention of information. The use of graphic narratives may enable individuals to better understand medical information in general.