Recruitment of south Asian carers into a survey-based research study. (April 2021)

• Record Type: Journal Article
• Authors: Fry, Gary; Gilgallon, Kathryn; Khan, Wajid; Reynolds, Damian; Spencer, Graham; Wright, Alice; Parveen, Sahdia
• Is Part Of: Dementia. Volume 20:Number 3(2021)
• Page Start: 1154
• Page End: 1161
• Publication Date: 2021-04
• Subjects: caregivers -- dementia -- ethnicity -- health -- south Asian; Psychiatric social work -- Periodicals; Social work with older people -- Periodicals; Dementia -- Periodicals; 362.19683005
• DOI: 10.1177/1471301220909246
• Languages: English
• ISSNs: 1471-3012

Abstract

Because of challenges involved in recruitment, little research has focused on care needs of minority ethnic groups. This article reports on a study that recruited 186 British south Asian carers of people with dementia. Four obstacles were faced: language barriers, confusion over research, feelings of shame/stigma, and mistrust. Researchers drew on various methods: enlisting multilingual researchers; activating contacts in minority ethnic communities; engaging with community groups; emphasising potential for enhancing support services; and tailoring research instruments to minority ethnic issues. Tips are offered to other researchers recruiting minority ethnic participants into studies.