Community advisory boards: Experiences and common practices of clinical and translational science award programs. Issue 5 (20th October 2019)

• Record Type: Journal Article
• Authors: Stewart, M. Kathryn; Boateng, Beatrice; Joosten, Yvonne; Burshell, Dana; Broughton, Hilary; Calhoun, Karen; Huff Davis, Anna; Hale, Rachel; Spencer, Nicola; Piechowski, Patricia; James, Laura
• Is Part Of: Journal of clinical and translational science. Volume 3:Issue 5(2019)
• Page Start: 218
• Page End: 226
• Publication Date: 2019-10-20
• Subjects: Community advisory board, -- community engagement, -- community partnerships, -- best practices, -- implementation, -- survey; Clinical medicine -- Research -- Periodicals; Medicine, Experimental -- Periodicals; Human experimentation in medicine -- Periodicals; 616.027
• DOI: 10.1017/cts.2019.389
• Languages: English
• ISSNs: 2059-8661

Abstract

Abstract: Community advisory boards (CABs) are a valuable strategy for engaging and partnering with communities in research. Eighty-nine percent of Clinical and Translational Science Awardees (CTSA) responding to a 2011 survey reported having a CAB. CTSAs' experiences with CABs are valuable for informing future practice. This study was conducted to describe common CAB implementation practices among CTSAs; document perceived benefits, challenges, and contributions; and examine their progress toward desirable outcomes. A cross-CTSA collaborative team collected survey data from respondents representing academic and/or community members affiliated with CTSAs with CABs. Data representing 44 CTSAs with CABs were analyzed using descriptive statistics. A majority of respondents reported practices reflecting respect for CAB members' expertise and input such as compensation (75%), advisory purview beyond their CTSA's Community Engagement program (88%), and influence over CAB operations. Three-quarters provide members with orientation and training on roles and responsibilities and 89% reported evaluating their CAB. Almost all respondents indicated their CTSA incorporates the feedback of their CABs to some degree; over half do so a lot or completely. This study profiles practices that inform CTSAs implementing a CAB and provide an evaluative benchmark for those with existing CABs.