The experience of living with restless legs syndrome: A qualitative study. (July 2021)

• Record Type: Journal Article
• Authors: Harrison, Eloise G; Keating, Jennifer L; Morgan, Prue E
• Is Part Of: Journal of health psychology. Volume 26:Number 8(2021)
• Page Start: 1154
• Page End: 1167
• Publication Date: 2021-07
• Subjects: focus groups -- lived experience -- qualitative -- restless legs syndrome -- Willis–Ekbom disease; Clinical health psychology -- Periodicals; 613.019
• DOI: 10.1177/1359105319871632
• Languages: English
• ISSNs: 1359-1053

Abstract

Restless legs syndrome is a sensorimotor disorder that significantly affects quality of life. This study explored the experience of people living with restless legs syndrome. Focus groups were analysed thematically resulting in five themes. Participants described disempowerment in managing symptoms, difficulty coping and poor understanding of the condition. Participants tried many therapies with little relief and were unable to monitor treatment effects. Concerns with healthcare services were common. Feeling understood provided validation and empowerment. Healthcare providers can help people with restless legs syndrome by improving restless legs syndrome awareness, providing psychosocial support and education, and assisting people to monitor treatment effects.