Defining a standard set of outcomes for patients with psychosis. (30th September 2020)

• Record Type: Journal Article
• Authors: McKenzie, E; Shokraneh, F; Matkin, L; Fialho, L S; Gintner, T; Ilesanmi, C; Emelurumonye, I N; Addington, D
• Is Part Of: European journal of public health. Volume 30(2020)Supplement 5
• Publication Date: 2020-09-30
• Subjects: Epidemiology -- Europe -- Periodicals; Public health -- Europe -- Periodicals; 362.109405
• DOI: 10.1093/eurpub/ckaa166.345
• Languages: English
• ISSNs: 1101-1262

Abstract

Abstract: Background: A working group (WG) of researchers, clinicians, and service users was created to develop a Standard Set of Psychotic Disorder Outcomes. This study describes the ICHOM framework to create a minimum Standard Set of outcomes for Psychotic Disorders. Methods: The WG defined the scope of the project to include adolescents and adults meeting DSM-5 criteria for schizophrenia spectrum disorders or bipolar I disorder. A systematic literature review was conducted to extract patient outcomes. The WG then selected outcomes for this minimum standard set using an online modified Delphi consensus technique, throughout a series of video-conference calls. Outcome measures were identified through additional literature searches using a Terwee filter. These were evaluated by inclusion criteria, namely psychometric properties, feasibility of implementation, licensing fees and available translations. Results: In total, 7074 studies were screened for outcome extraction. Outcomes were extracted from the 239 of these which passed eligibility criteria. The WG voted to include 17 outcomes, grouped into 7 domains (symptoms, treatment, recovery, functioning, quality of life, physical health and safety). A further 24 outcomes were identified for bipolar disorder, grouped within the same domains. Conclusions: The outcomes recommended by the working group enable meaningful and standardized assessment of psychotic disorders worldwide. Adoption of the ICHOM framework can facilitate informed decision-making by healthcare providers, long term monitoring and improved global treatment outcomes in the long term. Key messages: Standard set provides a valid and easy tool for healthcare workers for measuring outcomes. Value based health care and outcomes measures could globally improve healthcare and at the same time reduce healthcare cost.