Family-Centered Care in the Transition to Early Hearing Intervention. (12th August 2020)

• Record Type: Journal Article
• Authors: Nickbakht, Mansoureh; Meyer, Carly; Scarinci, Nerina; Beswick, Rachael
• Is Part Of: Journal of deaf studies and deaf education. Volume 26:Number 1(2021)
• Page Start: 21
• Page End: 45
• Publication Date: 2020-08-12
• Subjects: Deafness -- Periodicals; Deaf -- Study and teaching -- Periodicals; 371.912
• DOI: 10.1093/deafed/enaa026
• Languages: English
• ISSNs: 1081-4159

Abstract

Abstract: This study aimed to explore and compare families' and professionals' perspectives on the implementation of family-centered care (FCC) (Moeller, Carr, Seaver, Stredler-Brown, & Holzinger, 2013 ) during the period between diagnosis of hearing loss (HL) and enrollment in early intervention (EI). A convergent mixed-methods study incorporating self-report questionnaires and semistructured in-depth interviews was used. Seventeen family members of children with HL and the 11 professionals who support these families participated in this study. The results suggested that the services engaged during the transition period partially adhered to the principles of FCC, including the provision of timely access to EI services and provision of emotional and social support. However, areas for improvement identified include strengthening family/professional partnerships, shared decision-making processes, collaborative teamwork, program monitoring, and consistency in the provision of information and support. Qualitative and quantitative research findings also indicated a lack of consistency in service provision during the transition period.