Introducing a Human Rights-based Disability Research Methodology. (1st September 2020)

• Record Type: Journal Article
• Authors: Arstein-Kerslake, Anna; Maker, Yvette; Flynn, Eilionóir; Ward, Olympia; Bell, Ruby; Degener, Theresia
• Is Part Of: Human rights law review. Volume 20:Number 3(2020)
• Page Start: 412
• Page End: 432
• Publication Date: 2020-09-01
• Subjects: human rights -- disability -- research methodology; Human rights -- Periodicals; 341.48105
• DOI: 10.1093/hrlr/ngaa021
• Languages: English
• ISSNs: 1461-7781

Abstract

Abstract: Research has the potential to be a powerful tool for the realisation of the rights of disabled people. However, antiquated research practices continue to marginalise disabled people by excluding them from research; inadequately remunerating them for participation in research; undertaking research that assumes difference; and not including their voice in the leadership design or implementation of research. This article builds on emancipatory, participatory and inclusive research methodologies to introduce a new human rights-based disability research methodology that presents a roadmap to overcome these problems and transform research into a means of rights realisation. It presents a protocol for the methodology that was created by the international Disability Human Rights Research Network. Finally, it explores many challenges that researchers may face when endeavouring to implement the methodology.