The experience of living with a chronic disease in pediatrics from the mothers' narratives: The Clinical Interview on Parental Sense of Grip on the Disease. Issue 2 (December 2020)

• Record Type: Journal Article
• Authors: Savarese, Livia; Freda, Maria Francesca; De Luca Picione, Raffaele; Dolce, Pasquale; De Falco, Raffaella; Alessio, Maria; Cancian, Mauro; Franzese, Adriana; Guarino, Maria Domenica; Perricone, Roberto; Petraroli, Angelica; Senter, Riccardo; Traverso, Claudia; Zanichelli, Andrea; Zito, Eugenio; Bova, Maria
• Is Part Of: Health psychology open. Volume 7:Issue 2(2020)
• Publication Date: 2020-12
• Subjects: adjustment -- children -- chronic disease -- clinical interview -- narrative analysis -- narratives -- parents -- qualitative analysis; Clinical health psychology -- Periodicals; Medicine and psychology -- Periodicals; 613.019
• DOI: 10.1177/2055102920971496
• Languages: English
• ISSNs: 2055-1029

Abstract

The Clinical Interview on the Sense of Grip on Chronic Disease has been administered to 68 mothers of children affected by Hereditary Angioedema (C1-Inh HAE), Type 1 Diabetes (T1D), Juvenile Rheumatoid Arthritis (JRA). The objectives are to detect general features of the experience of parenting children with chronic illness as well as the specificities of this experience related to the different conditions. Four Profiles of Sense of Grip were identified: Adempitive, Controlling, Reactive, Dynamic. The Sense of Grip Interview is an effective clinical tool for understanding the characteristics of the disease in daily life, which can help clinicians to encourage family adjustment to disease.