Relationship Between Symptom Severity and Caregiver Burden Experienced by Parents of Adults With Autism. (March 2021)

• Record Type: Journal Article
• Authors: Marsack-Topolewski, Christina N.; Maragakis, Alexandros
• Is Part Of: Focus on autism and other developmental disabilities. Volume 36:Number 1(2021)
• Page Start: 57
• Page End: 65
• Publication Date: 2021-03
• Subjects: caregiver burden -- severity -- aging caregivers -- adults with autism spectrum disorder -- activities of daily living; Autism in children -- Periodicals; Autistic children -- Education -- Periodicals; Autism -- Periodicals; Developmental disabilities -- Periodicals; 616.8982
• DOI: 10.1177/1088357620956927
• Languages: English
• ISSNs: 1088-3576

Abstract

This study examined the relationship between the severity of autism spectrum disorder (ASD) and caregiver burden among parents of adult children with ASD. Using a mixed-methods study, 320 parents of adults with ASD participated in the web-based survey, with 51 parents participating in follow-up interviews. The quantitative analysis was used to determine whether caregiver burden could be predicted from the severity of ASD factors (communication, behavior, and socialization) and basic and instrumental activities of daily living (BADLs and IADLs). Results indicated that caregiver burden was predicted from BADLs, IADLs, and adult child behavior. Interview themes that emerged from qualitative analyses supported quantitative findings. Behavior was the strongest predictor of caregiver burden and discussed by parents during interviews. Professionals should develop behavioral support programs for adults with ASD to continue to reinforce positive behavior and support parents who are managing their adult child's difficult behaviors.