Availability and quality assessment of online nutrition information materials for pelvic cancer patients in the UK. (16th April 2019)

• Record Type: Journal Article
• Authors: Saltaouras, Georgios; Lightowler, Helen; Coe, Shelly; Brett, Jo; Watson, Eila K.
• Is Part Of: European journal of cancer care. Volume 28:Number 4(2019)
• Page Start: n/a
• Page End: n/a
• Publication Date: 2019-04-16
• Subjects: nutrition -- patient information -- pelvic cancers -- public and patient involvement -- quality -- readability; Cancer -- Nursing -- Periodicals; 616.994
• DOI: 10.1111/ecc.13039
• Languages: English
• ISSNs: 0961-5423

Abstract

Abstract: Objective: Written information can be an essential source of support in the promotion of lifestyle changes after a cancer diagnosis. This study aimed to identify and assess the quality of available online patient information materials (PIMs) in relation to diet and nutrition for patients with pelvic cancer. Methods: The online sources of the National Health Service, cancer centres and charitable organisations throughout the UK were searched. Content was assessed using an evidence‐based checklist, and readability with two validated formulas. Consumer feedback was sought through patient and public involvement (PPI) groups. Results: Forty PIMs were identified; four were designed specifically for pelvic cancers (bladder, bowel, prostate) and 36 were generic (relevant for all cancers). Most PIMs had a good content score, with PIMs from charities scoring higher overall than PIMs from cancer centres [32 (4) vs. 23 (11), p < 0.001]. Seventy‐three percent of PIMs had a readability score within acceptable levels (6th–8th grade; reading ability of 11–14 year‐olds). PPI contributors found most PIMs useful and comprehensive but lacking specific information needed to meet individual needs. Conclusion: There is limited availability of online PIMs for cancer survivors and even fewer tailored to pelvic cancers. Most materials have comprehensive content and acceptable readability. Some PIMs may require improvement.