Self-management in children and young people with epilepsy: A systematic review and qualitative meta-synthesis. (January 2021)

• Record Type: Journal Article
• Authors: Mooney, Orla; McNicholl, Aoife; Lambert, Veronica; Gallagher, Pamela
• Is Part Of: Journal of health psychology. Volume 26:Number 1(2021)
• Page Start: 126
• Page End: 139
• Publication Date: 2021-01
• Subjects: children and young people -- epilepsy -- meta-synthesis -- self-management -- systematic review; Clinical health psychology -- Periodicals; 613.019
• DOI: 10.1177/1359105320963536
• Languages: English
• ISSNs: 1359-1053

Abstract

The aim of this review was to conduct a meta-synthesis of qualitative studies exploring the self-management experiences, attitudes and perspectives of children and young people (CYP) living with epilepsy. Five databases were systematically searched up to September 2019. Fourteen papers were included. One analytical theme: self-management strategies was generated informed by four descriptive themes; concealment; medicine adherence; self-monitoring of activities; and seeking social support. The synthesis identified that while CYP with epilepsy engage in specific self-management strategies, there is limited evidence in understanding self-management and the processes underlying the use of it. Future research examining self-management in childhood is required.