Evaluation of the psychological status of mothers of children with cystic fibrosis and the relationship between children's clinical status. (1st July 2020)

• Record Type: Journal Article
• Authors: Unal Yuksekgonul, Ayşe; Aslan, Ayse T; Sismanlar Eyuboglu, Tugba; Soysal, Sebnem; Budakoglu, Işıl I
• Is Part Of: Journal of paediatrics and child health. Volume 56:Number 10(2020)
• Page Start: 1537
• Page End: 1543
• Publication Date: 2020-07-01
• Subjects: burnout -- child‐rearing attitude -- cystic fibrosis -- depression -- severity of disease; Children -- Health and hygiene -- Periodicals; Pediatrics -- Periodicals; 618.92
• DOI: 10.1111/jpc.14983
• Languages: English
• ISSNs: 1034-4810

Abstract

Abstract : Aim: In this study, we aimed to determine the psychosocial status of primary care givers of children with cystic fibrosis ( CF ) and its relationship with the clinical scores of children with CF. Methods: Thirty‐six patients with CF and their primary care givers were assessed. A personal information form, as well as the Parent Attitude Research Instrument, Maslach Burnout Inventory, Beck Depression Scale and modified Shwachman‐Kulczycki Score, were used for data collection. Results: All the CF children's primary care givers were their mothers. The mothers' occupation and educational level affected their child‐rearing attitudes ( P < 0.05). Furthermore, the frequency of hospital visits and hospitalizations was associated with increased emotional exhaustion, depression and negative attitudes towards child‐rearing ( P < 0.05). Higher levels of emotional exhaustion in mothers were associated with increased depersonalization and depression, while personal accomplishment was associated with lower levels of depression ( P < 0.05). Depression was present in 69.4% of mothers, and its severity was correlated with their children having a poor clinical status. Moreover, increased depression was associated with increased negative attitudes towards child‐rearing ( P < 0.05). Conclusion: The rate of depression is high in mothers of children with CF. These mothers displayed a negative attitude towards child‐rearing, along with the disease, which was more severe in their children. These mothers should undergo routine psychosocial screening, and support should be given to those in need.