Exploring the perception of survivors on the bidirectional impact between cancer and their social contexts: A mixed-methods approach. Issue 6 (December 2019)

• Record Type: Journal Article
• Authors: Palmer Kelly, Elizabeth; Agne, Julia L.; Pawlik, Timothy M.
• Is Part Of: Palliative & supportive care. Volume 17:Issue 6(2019)
• Page Start: 668
• Page End: 676
• Publication Date: 2019-12
• Subjects: Mixed-methods, -- Cancer, -- Relationships, -- Social contexts, -- Bidirectional influence; Palliative treatment -- Great Britain -- Periodicals; 616.029
• DOI: 10.1017/S1478951519000038
• Languages: English
• ISSNs: 1478-9515

Abstract

Abstract: Objective: The purpose of the current study was to use a mixed-methods approach to assess the perspective of cancer survivors on the bidirectional impact between cancer and their social contexts. Method: A fixed concurrent triangulation mixed-methods survey design was used with open- and closed-ended questions that were predetermined and administered to participants. Quantitative items included demographic questions and the Life Impact Checklist. Qualitative questions were designed to explore the bidirectional impact between the patient and specific contexts including spirituality/faith, the spousal/partner relationship, and the family. A cross-sectional descriptive approach was used to evaluate the quantitative items and the constant comparative method guided the analysis of open-ended questions. Result: Among 116 participants (mean age 58.4 years), the majority were female (66.7%) with breast cancer (27.9%). Nearly one-half the respondents endorsed a positive impact of cancer on their spirituality/faith, but qualitative results suggested less of a bidirectional impact. The importance of the spouse/partner during the cancer experience was emphasized, including the subthemes of instrumental and emotional support; however, there was often a negative impact of cancer on the spouse/partner relationship, including sexual functioning. Survivors indicated family members provided instrumental and emotional support, but not as regularly or directly as a spouse/partner. Significance of results: Social contexts are important among cancer survivors, with many cancer survivors relying more on their spouse/partner than other family members for support. The cancer experience is stressful not only for survivors, but also for individuals in their social contexts and relationships.