Survivorship care experiences, information, and support needs of patients with oral and oropharyngeal cancer. (20th January 2016)

• Record Type: Journal Article
• Authors: Manne, Sharon; Hudson, Shawna V.; Baredes, Soly; Stroup, Antoinette; Virtue, Shannon Myers; Paddock, Lisa; Kalyoussef, Evelyne
• Is Part Of: Head & neck. Volume 38(2016)Supplement 1
• Page Start: E1935
• Page End: E1946
• Publication Date: 2016-01-20
• Subjects: oral cancer survivors -- posttreatment care -- information needs -- support needs -- survivorship care plan; Head -- Diseases -- Periodicals; Neck -- Diseases -- Periodicals; Head -- Periodicals; Neck -- Periodicals; Face -- Periodicals; 617.51059
• DOI: 10.1002/hed.24351
• Languages: English
• ISSNs: 1043-3074

Abstract

Abstract: Background: There is little research documenting the posttreatment experiences and needs of oral/oropharyngeal cancer survivors. Methods: In this cross‐sectional study, 92 patients with oral/oropharyngeal cancer diagnosed between 2 and 5 years prior completed a survey about oral cancer information and support needs. Results: About half retrospectively reported that they did not receive a written treatment summary. The desire for more oral cancer information was common; one‐third or more desired more information about long‐term effects, recommended follow‐up, and symptoms that should prompt contacting a doctor. Support needs were less common; only a lack of energy was rated as a significant support need. Patients who had a recurrence, did not drink alcohol, and had a greater recurrence fear desired more information. Smokers and more distressed patients reported more support needs. Conclusion: Survivors reported the desire for more oral cancer information. A desire for assistance was less common. © 2016 Wiley Periodicals, Inc. Head Neck 38 : E1935–E1946, 2016