Electronic linkage and interrogation of administrative health, social care, and criminal justice datasets: feasibility concerning process and content. (1st October 2020)

• Record Type: Journal Article
• Authors: Higgins, Cassie; Matthews, Keith
• Is Part Of: Informatics for health & social care. Volume 45:Number 4(2020)
• Page Start: 444
• Page End: 460
• Publication Date: 2020-10-01
• Subjects: Health informatics -- electronic data linkage -- safe haven -- data governance; Medicine -- Information services -- Periodicals; Medical informatics -- Periodicals; Medicine -- Data processing -- Periodicals; 025.0661
• DOI: 10.1080/17538157.2020.1793346
• Languages: English
• ISSNs: 1753-8157

Abstract

ABSTRACT: The objective was to test the feasibility of a novel model of electronic linkage and interrogation of large, sensitive, administrative datasets derived from health care, social care, and criminal justice. Participants comprised all individuals having completed suicide or drug-related death in Tayside between 2009 and 2014. Data were hosted, linked, and pseudo-anonymized by a Trusted Third Party and were interrogated via secure access to the HIC Scottish Government-certified Safe Haven. Several barriers were encountered concerning data access, with all but one issue (obtaining criminal justice data) ultimately soluble. However, each barrier led to a substantial delay in either obtaining the required approvals or in receiving the specified data extracts. Generally, data coverage was good but data quality was poor, with almost a fifth of the data fields (17%) being less than 10% complete. The feasibility of this novel approach was demonstrated. Critically, this was achieved because of the central involvement of a Trusted Third Party and the use of a Government-certified Safe Haven. Future studies using a similar model of data acquisition and analysis should consider the potential delays resulting from organizations' lack of familiarity with their data-sharing protocols and procedures.