What patients want to ask their doctors: Data analysis from Question Builder, an online question prompt list tool. Issue 5 (May 2020)

• Record Type: Journal Article
• Authors: Tracy, Marguerite C.; Shepherd, Heather L; Ivers, Rowena G.; Mann, Meghan; Chiappini, Lucia; Trevena, Lyndal J.
• Is Part Of: Patient education and counseling. Volume 103:Issue 5(2020)
• Page Start: 937
• Page End: 943
• Publication Date: 2020-05
• Subjects: Question prompt list -- Shared decision making -- Question asking; Patient education -- Periodicals; Health counseling -- Periodicals; Health education -- Periodicals; Counseling -- Periodicals; Patient Education -- Periodicals; Éducation des patients -- Périodiques; Counseling -- Périodiques; Éducation sanitaire -- Périodiques; 615.5071
• DOI: 10.1016/j.pec.2019.11.023
• Languages: English
• ISSNs: 0738-3991

Abstract

Highlights: Question Builder is a web-based patient question prompt list (QPL) tool. Users started more lists for general practice consultations than for specialists'. Users prioritised questions which facilitate shared decision making. Barriers to completing a list using the tool need to be explored. Investigation of doctor attitudes to Question Builder QPLs is warranted. Abstract: Objectives: Question prompt lists (QPLs) are one strategy to increase patient participation in healthcare decisions but the extent to which consumers might access them in the 'real world' is largely unknown. This study measured usage of a passively-promoted, government-funded web-based patient-generated QPL tool, called Question Builder (Australia) (QB) hosted on healthdirect.gov.au, a consumer health information website. Methods: 12.5months of post-launch Google Analytics data from QB were analysed. Two existing coding frameworks (RIAS and ACEPP) were used to code QB questions thematically and 107 user-generated lists were analysed further to determine the questions chosen and prioritised. Results: QB was accessed 8915 times, 4000 question lists were commenced and 1271 lists completed. Most lists were for general practice (GP) consultations (2444) rather than specialist consultations (1556). The most frequently chosen question was "Do I need any tests?". Shared decision-making questions (SDM) made up 40% of questions prioritised e.g. "Do I need any treatment and what are my treatment options?" Conclusions: There is active use of this online QPL, with strong interest in creating lists for GP consultations. Question Builder users prioritised questions which facilitate SDM. Practice Implications: More research is required to assess the utilisation of QB in practice and health professionals' views of QB .