Hair, Hormones, and Haunting: Race as a Ghost Variable in Polycystic Ovary Syndrome. (September 2020)

• Record Type: Journal Article
• Authors: Carlin, Elizabeth; Kramer, Brandon
• Other Names: Karkazis Katrina guest-editor.; Jordan-Young Rebecca guest-editor.
• Is Part Of: Science, technology, & human values. Volume 45:Number 5(2020:Sep.)
• Page Start: 779
• Page End: 803
• Publication Date: 2020-09
• Subjects: epistemology -- race and racism -- molecularization -- cultures and ethnicities -- feminism; Science -- Social aspects -- Periodicals; Technology -- Social aspects -- Periodicals; Humanities -- Periodicals; 303.48305
• DOI: 10.1177/0162243920908647
• Languages: English
• ISSNs: 0162-2439

Abstract

In this paper, we examine how polycystic ovary syndrome (PCOS) is racialized in biomedical research. Drawing from Star's seminal concept of triangulation, we analyze how the diagnostic criteria for PCOS combine two different biomarkers: body hair and testosterone. Hair and hormones are both haunted by their use in eugenic research, and as clinical measures, they can carry forward powerful narratives of biological difference. PCOS researchers circulate strong claims about racial difference in hirsutism ("male-pattern" hair growth in women) as if they were established knowledge, sometimes calling for race-specific diagnostic thresholds. Tracing the links between (1) race and hirsutism, (2) hirsutism and testosterone, and (3) testosterone and race, we find that these connections are all conceptualized in ambiguous and inconsistent ways. Through triangulation, the uncertainty clouding each link is mitigated by the apparent strength of the chain as a whole. The logic linking race to disease is attenuated, allowing race to persist as a ghost variable. As PCOS is increasingly reframed as a risk factor for other conditions, racial stratification is submerged, implicit but actionable, at every stage of the life course cascade of risk.