ECMO survivors' quality of life and needs after discharge: A descriptive, comparative cross-sectional pilot study. (August 2020)

• Record Type: Journal Article
• Authors: Tiedebohl, Jennifer M.; DeFabio, Michelle E.; Bell, Theodore; Buchko, Barbara L.; Woods, Anne B.
• Is Part Of: Intensive and critical care nursing. Volume 59(2020)
• Publication Date: 2020-08
• Subjects: Comparative study -- Extracorporeal membrane oxygenation -- Follow-up -- Gender -- Quality of life; Intensive care nursing -- Periodicals; Critical Illness -- nursing -- Periodicals; Intensive Care -- Periodicals; Nursing Care -- Periodicals; Intensive care nursing; Periodicals; Electronic journals; 616.028
• DOI: 10.1016/j.iccn.2020.102829
• Languages: English
• ISSNs: 0964-3397

Abstract

Abstract: Objectives: To describe gender differences in health-related quality of life and characterise discharged patients' perceptions of follow-up needs after extracorporeal membrane oxygenation. Research methodology/design: A descriptive, comparative cross-sectional pilot design was used. Adult patients receiving extracorporeal membrane oxygenation discharged between January 1, 2016 and March 31, 2018 participated in telephone interviews. Setting: A 580-bed community teaching hospital in south central Pennsylvania. Main outcome measures: Health-related quality of life was measured with the Rand 36-item Short Form Health Survey. Open-ended questions identified post-discharge healthcare services and perceived follow-up needs. Results: Of 30 eligible patients, 24 completed a telephone interview. All health-related quality of life dimensions, except for role-emotional and mental health, were lower in post- extracorporeal membrane oxygenation patients at follow-up compared to national norms. Women scored lower than men in all health-related quality of life dimensions. The most frequent post-discharge services used were physical therapy (66.7%), rehabilitation (62.5%) and occupational therapy (54.2%). The need for coordination of care post-discharge was identified. Conclusions: Given long-term sequelae of extracorporeal membrane oxygenation on health-related quality of life and gender differences in health-related quality of life outcomes, ongoing interdisciplinary follow-up is imperative to ensure comprehensive patient management across the continuum of care.