Measuring Health-Related Quality of Life in Pediatric Neurology. (September 2020)

• Record Type: Journal Article
• Authors: Lemmon, Monica E.; Huffstetler, Hanna E.; Reeve, Bryce B.
• Is Part Of: Journal of child neurology. Volume 35:Number 10(2020:Oct.)
• Page Start: 681
• Page End: 689
• Publication Date: 2020-09
• Subjects: health-related quality of life -- neurology -- pediatrics; Nervous system -- Diseases -- Periodicals; 618.928
• DOI: 10.1177/0883073820923809
• Languages: English
• ISSNs: 0883-0738

Abstract

Health-related quality of life (HRQOL) is central to how clinicians and parents make choices about medical care for pediatric neurology patients. To provide parents with the information they need to make these decisions and plan for the future, it is necessary for parents and clinicians to understand how HRQOL is defined and measured in the setting of pediatric neurodevelopmental impairment. We review challenges that exist in measuring HRQOL in pediatric neurology, examine existing measures, and outline key principles to guide selection and interpretation of HRQOL measures in children with neurologic conditions.