How can we describe impact of adult patient participation in health-service development? A scoping review. Issue 8 (August 2020)

• Record Type: Journal Article
• Authors: Sandvin Olsson, Ann Britt; Strøm, Anita; Haaland-Øverby, Mette; Fredriksen, Kari; Stenberg, Una
• Is Part Of: Patient education and counseling. Volume 103:Issue 8(2020)
• Page Start: 1453
• Page End: 1466
• Publication Date: 2020-08
• Subjects: Patient participation -- User involvement -- Co-production -- Patient advocacy -- Health care reform -- Quality improvement -- Health services -- Primary health care -- Mental health services -- Hospitals -- Review; Patient education -- Periodicals; Health counseling -- Periodicals; Health education -- Periodicals; Counseling -- Periodicals; Patient Education -- Periodicals; Éducation des patients -- Périodiques; Counseling -- Périodiques; Éducation sanitaire -- Périodiques; 615.5071
• DOI: 10.1016/j.pec.2020.02.028
• Languages: English
• ISSNs: 0738-3991

Abstract

Highlights: Patient participation in health-service development is not a common practice. Impact of patient participation in health-service development is understudied. The literature describes a broad variation of impacts from service development. Participatory health-service development leads to more patient participation. Our review can be of practical relevance to those conducting service development. Abstract: Objective: Patient participation represents a worldwide policy, but its impact lacks research. This study investigates impact of patient participation in health-service development by providing a comprehensive overview of how the literature describes it. Method: A scoping review with a broad search strategy was conducted. The literature was examined for study characteristics, purpose for, approaches to and impact of patient participation. The data were analyzed using a thematic analysis. Results: The 34 included primary studies reported impacts of patient participation that were interpreted to constitute two categories: 1. The participatory process´ impact on involved patient representatives and health professionals, and the organization´s patient participation practice itself. 2. The participatory service development´s impact on the design and delivery of services regarding patients and health professionals, and the organization. Conclusion: The literature describes a broad variation of impacts from health-service development, relevant for health professionals and patient representatives when initiating or participating in such processes. Our review provides an overview and discussion of these types of impact. Practice implications: The findings can be of practical relevance to those aiming to develop services, quality indicators regarding effects of patient participation, or to further investigate aspects of participatory service development.