Tailoring the amount of treatment information to cancer patients' and survivors' preferences: Effects on patient-reported outcomes. Issue 3 (March 2020)

• Record Type: Journal Article
• Authors: Lehmann, Vicky; Labrie, Nanon H.M.; van Weert, Julia C.M.; van Dulmen, Sandra; de Haes, Hanneke J.C.J.M.; Kersten, Marie José; Pieterse, Arwen H.; Smets, Ellen M.A.
• Is Part Of: Patient education and counseling. Volume 103:Issue 3(2020)
• Page Start: 514
• Page End: 520
• Publication Date: 2020-03
• Subjects: Information tailoring -- Patient-provider communication -- Hematology/oncology -- Information recall -- Satisfaction -- Trust -- Information provision -- Cancer -- Video vignettes; Patient education -- Periodicals; Health counseling -- Periodicals; Health education -- Periodicals; Counseling -- Periodicals; Patient Education -- Periodicals; Éducation des patients -- Périodiques; Counseling -- Périodiques; Éducation sanitaire -- Périodiques; 615.5071
• DOI: 10.1016/j.pec.2019.09.024
• Languages: English
• ISSNs: 0738-3991

Abstract

Highlights: Tailoring the amount of medical information does not affect satisfaction or trust. Cancer survivors' own information preferences determine their information recall. Those preferring limited information can be overwhelmed by extensive information. Tailoring in video-vignette designs can create different levels of (mis)match. Abstract: Objectives: Tailoring medical information to cancer patients' needs is recommended, but there is little guidance on how to tailor, and limited research exists about its effects. Tailoring to the amount of preferred information may be easily implementable in clinic and is tested here. Methods: A video-vignette experiment was used to systematically vary video patients' information preferences (limited/extensive) and amount of provided information (additional/no additional). N = 253 cancer patients/survivors evaluated these video-recorded consultations, serving as analogue patients (APs), and completed outcome measures. Results: Tailoring information to video patients' preferences had no effect on APs' evaluation of the consultation (satisfaction, trust). Yet, there was a main effect of APs' own information preferences: Those preferring extensive information recalled ( MΔ = 5.8%) and recognized ( MΔ = 3.5%) more information than those preferring limited information. Moreover, information provision mattered among APs who preferred limited information: They recognized even less if provided with extensive information. Conclusions: Tailoring to the amount of video patient's information preferences did not affect APs' evaluation of the consultation (satisfaction, trust), while APs' personal information preferences determined their recall and recognition of medical information. Practice implications: Information preferences should be assessed and tailored to in clinical practice. Overwhelming patients/survivors, who prefer limited information, should be prevented.