Investigation burden for patients with fibrotic interstitial lung disease at the end of life. Issue 6 (14th June 2020)

• Record Type: Journal Article
• Authors: Guo, Hui; Mann, Jennifer; Goh, Nicole; Smallwood, Natasha
• Is Part Of: Internal medicine journal. Volume 50:Issue 6(2020)
• Page Start: 748
• Page End: 752
• Publication Date: 2020-06-14
• Subjects: palliative care -- interstitial lung disease -- pulmonary fibrosis -- investigation -- end‐of‐life care; Medicine -- Periodicals; 616
• DOI: 10.1111/imj.14856
• Languages: English
• ISSNs: 1444-0903

Abstract

Abstract: Fibrotic interstitial lung disease (f‐ILD) has a guarded prognosis, and the goal of therapy in advanced‐stage disease should be symptom‐based. Despite this, patients may still undergo burdensome investigation at the end of life. A retrospective audit was performed on 67 patients who died from f‐ILD at the Royal Melbourne and Austin Hospitals between 2012 and 2016. Increased investigation burden was associated with lack of outpatient palliative care referral and documented advance care plan, and admission to a high‐dependency unit. Eighteen per cent of patients underwent ongoing investigations after the institution of comfort care. These findings highlight the unmet end‐of‐life care needs of people with f‐ILD.