A roadmap to develop dementia research capacity and capability in Pakistan: A model for low‐ and middle‐income countries. Issue 1 (1st January 2019)

• Record Type: Journal Article
• Authors: Leroi, Iracema; Chaudhry, Nasim; Daniel, Anna; Dunne, Ross; Eman, Saima; Farina, Nicolas; Haidry, Sana‐e‐Zehra; Husain, Nusrat; Jafri, Hussain; Karim, Salman; Kiran, Tayyeba; Khan, Murad; Khan, Quratulain; Malik, Shakil Jehangir; Memon, Rakhshi; Rana, Mowadat Hussain; Sathish, Ambily; Sheikh, Saima; Tamizudin, Asad; Tofique, Sehrish; Zadeh, Zainab; Abbasi, Yasser; Eitesam, Sadaf; Jafri, Mohammed; Khaliq, Aysha; Karim, Raheel; Nafis, Saima; Wasay, Mohammad
• Is Part Of: Alzheimer's & dementia. Volume 5:Issue 1(2019)
• Page Start: 939
• Page End: 952
• Publication Date: 2019-01-01
• Subjects: Dementia -- Lower and middle‐income country (LMIC) -- Research roadmap -- Pakistan -- South Asia -- Capacity and capability building -- Older adult -- Mental health -- Alzheimer disease -- Research question prioritization; Dementia -- Periodicals; Dementia -- Treatment -- Periodicals; Alzheimer's disease -- Treatment -- Periodicals; Alzheimer's disease -- Periodicals; 616.831
• DOI: 10.1016/j.trci.2019.11.005
• Languages: English
• ISSNs: 2352-8737

Abstract

Abstract: Objective: To produce a strategic roadmap for supporting the development of dementia research in Pakistan. Background: While global research strategies for dementia research already exist, none is tailored to the specific needs and challenges of low‐ and middle‐income countries (LMIC) like Pakistan. Methods: We undertook an iterative consensus process with lay and professional experts to develop a Theory of Change‐based strategy for dementia research in Pakistan. This included Expert Reference Groups (ERGs), strategic planning techniques, a "research question" priority survey, and consultations with Key Opinion Leaders. Results: We agreed on ten principles to guide dementia research in Pakistan, emphasizing pragmatic, resource sparing, real‐world approaches to support people with dementia, both locally and internationally. Goals included capacity/capability building. Priority research topics included raising awareness and understanding of dementia, and improving quality of life. Conclusion: This roadmap may be a model for other LMIC health ecosystems with emerging dementia research cultures.