The Lived Experiences of Adolescents With Cancer: A Phenomenological Study. (May 2020)

• Record Type: Journal Article
• Authors: Chien, Ching-Hui; Chang, Yung-Ying; Huang, Xuan-Yi
• Is Part Of: Clinical nursing research. Volume 29:Number 4(2020)
• Page Start: 217
• Page End: 225
• Publication Date: 2020-05
• Subjects: lived experiences -- adolescent -- cancer -- phenomenology; Nursing -- Research -- Periodicals; Nursing -- Periodicals; Clinical medicine -- Research -- Periodicals; 610.73
• DOI: 10.1177/1054773818799226
• Languages: English
• ISSNs: 1054-7738

Abstract

This descriptive phenomenological study was conducted to explore the lived experiences of adolescents with cancer. Purposive sampling was used to recruit participants. In-depth, nonstructured interviews were conducted to collect data, and narratives were analyzed using Colaizzi's seven-step method. Data saturation was achieved after interviewing 16 participants. The study was divided into three main themes and 16 subthemes: suffering (caused by symptoms, therapy, cancer recurrence, the feeling of being trapped in hospital, the burden of food therapy, delayed education, the absence of peer relationships, and limited activities), emotional reactions (fear, worry, sadness, anger, and loneliness), and rebalancing (strong family relationships, optimistic thinking, and healthy lifestyles). While adolescents with cancer experience changes in lifestyle, and physical, psychological, and social burden, they also have positive life experiences. Building appropriate learning systems, improving communication skill, and providing appropriate food therapy may alleviate the psychological burden experienced by young patients.