The Rise of Citizen Science in Health and Biomedical Research. Issue 8 (3rd August 2019)

• Record Type: Journal Article
• Authors: Wiggins, Andrea; Wilbanks, John
• Is Part Of: American journal of bioethics. Volume 19:Issue 8(2019)
• Page Start: 3
• Page End: 14
• Publication Date: 2019-08-03
• Subjects: citizen science -- confidentiality and privacy -- participatory research -- professional–patient relationship -- research ethics -- social science research; Bioethics -- Periodicals; Medical ethics -- Periodicals; 174.957
• DOI: 10.1080/15265161.2019.1619859
• Languages: English
• ISSNs: 1526-5161

Abstract

Abstract : Citizen science models of public participation in scientific research represent a growing area of opportunity for health and biomedical research, as well as new impetus for more collaborative forms of engagement in large-scale research. However, this also surfaces a variety of ethical issues that both fall outside of and build upon the standard human subjects concerns in bioethics. This article provides background on citizen science, examples of current projects in the field, and discussion of established and emerging ethical issues for citizen science in health and biomedical research.