An eHealth insomnia intervention for children with neurodevelopmental disorders: Results of a usability study. (March 2020)

• Record Type: Journal Article
• Authors: Tan-MacNeill, Kim M.; Smith, Isabel M.; Weiss, Shelly K.; Johnson, Shannon A.; Chorney, Jill; Constantin, Evelyn; Shea, Sarah; Hanlon-Dearman, Ana; Brown, Cary A.; Godbout, Roger; Ipsiroglu, Osman; Reid, Graham J.; Corkum, Penny V.
• Is Part Of: Research in developmental disabilities. Volume 98(2020)
• Publication Date: 2020-03
• Subjects: BNBD Better Nights, Better Days (name of intervention) -- BNBD-NDD Better Nights, Better Days for Children with Neurodevelopmental Disorders (name of intervention) -- TD typically developing -- NDD neurodevelopmental disorders -- ADHD attention-deficit / hyperactivity disorder -- ASD autism spectrum disorder -- CP cerebral palsy -- FASD fetal alcohol spectrum disorder -- BIQ Behavioural Insomnia Questionnaire -- SILS Single Item Literacy Scale -- PSQ Pediatric Sleep Questionnaire -- ES-UQ End of Session Usability Questionnaire -- O-UQ Overall Usability Questionnaire -- RCT randomized controlled trial; Usability -- Online intervention -- eHealth -- Children -- Neurodevelopmental disorders -- Insomnia; Developmental disabilities -- Periodicals; Developmentally disabled -- Research -- United States -- Periodicals; Developmentally disabled children -- Education -- Research -- United States -- Periodicals; Developmental Disabilities -- Periodicals; Disabled -- Periodicals; Mental Retardation -- rehabilitation -- Periodicals; Personnes atteintes de troubles du développement -- Recherche -- États-Unis -- Périodiques; Enfants atteints de troubles du développement -- Éducation -- Recherche -- États-Unis -- Périodiques; Développement, Troubles du -- Recherche -- États-Unis -- Périodiques; 616.858800
• DOI: 10.1016/j.ridd.2020.103573
• Languages: English
• ISSNs: 0891-4222

Abstract

Highlights: Insomnia treatment is needed for children with neurodevelopmental disorders (NDD). Better Nights, Better Days (BNBD) is an eHealth program for typically developing children. Parents of children with NDD reported BNBD was usable, feasible, and acceptable. Parents' main recommendation was to add some diagnosis-specific information and strategies. Results largely support a modular transdiagnostic approach to insomnia treatment. Abstract: Background: Sleep problems, particularly insomnia, are highly prevalent in children with neurodevelopmental disorders (NDD) and can negatively affect health and development. eHealth interventions may increase access to evidence-based care for insomnia for children with NDD, as programs are rare in most communities. Better Nights, Better Days (BNBD) is an online, parent-implemented intervention for pediatric insomnia in typically developing 1- to 10-year-olds. Aims: The present study examined whether parents of children with NDD perceived the original BNBD to be usable, acceptable, and feasible, and what modifications might be necessary to adapt it for children with NDD. Methods and procedures: Twenty Canadian parents/caregivers of children aged 4–10 years with NDD and insomnia implemented the BNBD intervention with their children, and completed usability questionnaires. Questionnaire data were analyzed quantitatively (descriptive statistics) and qualitatively (thematic analysis). Outcomes and results: Participants reported the intervention to be usable, useful, acceptable, and feasible. Several modifications were suggested to make the intervention more appropriate and acceptable for use with children with NDD. Conclusions and implications: Results support a largely transdiagnostic approach to treating sleep in children with NDD, and will inform the development of BNBD for Children with Neurodevelopmental Disorders (BNBD-NDD).