N029 Patients experience of advice received on the use of topical therapies in inflammatory bowel disease (IBD). (16th January 2018)

• Record Type: Journal Article
• Authors: Tyrrell, T; Whitley, L; Adio, J; Greveson, K; Hall, A; Yarrow, H; Medcalf, L; Parker, H
• Is Part Of: Journal of Crohn's and colitis. Volume 12:Number 1(2018:Jan.)Supplement 1
• Page Start: S581
• Page End: S581
• Publication Date: 2018-01-16
• Subjects: Inflammatory bowel diseases -- Periodicals; 616.344005
• DOI: 10.1093/ecco-jcc/jjx180.1043
• Languages: English
• ISSNs: 1873-9946

Abstract

Abstract: Background: A combination of both topical (suppositories or enemas) with oral mesalazines are first-line treatments for mild to moderately active left sided colitis. 1, 2 Members of the UK Royal College of Nursing 3 IBD Nurse network in London and southeast region perceived variability in the advice given. We aimed to investigate patient experience of advice given using topical treatment. Methods: A 12-item questionnaire was developed by the regional IBD nurse network and approved by local governance team. Patients were selected from four hospitals across London. Patients who had known IBD and used topical therapy in the past were approached. Results: Ninety-nine patients completed the questionnaire. There were 47 males. Seventy-six had ulcerative colitis and 20 Crohn's disease, 2 indeterminate IBD and 1 unknown. The majority of advice was given by doctors (57/99) and nurses (37/99). Over half of the responders (58) were advised to use the product lying down, 17 said no advice was given, 16 standing up, 15 however comfortable and 1 no response. The majority of patients were advised to use the topical treatment at night (60/108) (Figure 1). Advice regarding time to retain medication was varied: 28 patients reported no advice given, 25—as long as possible the rest were advised between 10–30 min. Only 21 patients responded to reasons for non-compliance with 20 of these commenting that they were not comfortable. When asked if an information leaflet was needed 73 replied yes, 13 no and 13 no comment. Lastly, the patients were asked what you would find useful. Response included a YouTube video and other patient's experiences. Tips such as: "if it does not work, do not panic! And you need to be relaxed for it to work were recorded." Conclusions: There are significant variations in the advice and education provided to patients. The type of information given also varies between IBD centres and between health professional groups within the IBD centres. There is a need for a standardised information leaflet to provide clear advice and education to our patients on the use of topical treatments which is the current work stream for the group. References: 1. Diagnass A. European evidence-based consensus on the diagnosis and management of ulcerative colitis. Part 2: Current management. J Crohn's Colitis, 2012;991–1030. 2. NICE. Ulcerative colitis. Management in adults, children and young people. NICE, 2013;37–166. 3. Royal College of Nursing. RCN inflammatory bowel disease. 2014. IBD Network, RCN, http://www.rcn.org.uk/development/nursing_communities/rcnfourms/gastrointestinalnursingfourm/inflammotoryboweldisease .