0993 Community-Based Participatory Research Methods in Sleep Medicine: Lessons Learned. (12th April 2019)

• Record Type: Journal Article
• Authors: Chung, A; Williams, N; Robbins, R; Seixas, A; Rogers, A; Chanko, N; Chung, D; Jean-Louis, G
• Is Part Of: Sleep. Volume 42(2019)Supplement 1
• Page Start: A399
• Page End: A400
• Publication Date: 2019-04-12
• Subjects: Sleep -- Physiological aspects -- Periodicals; Sleep disorders -- Periodicals; Sommeil -- Aspect physiologique -- Périodiques; Sommeil, Troubles du -- Périodiques; Sleep disorders; Sleep -- Physiological aspects; Sleep -- physiological aspects; Sleep Wake Disorders; Psychophysiology; Electronic journals; Periodicals; 616.8498
• DOI: 10.1093/sleep/zsz067.990
• Languages: English
• ISSNs: 0161-8105

Abstract

Abstract: Introduction: Based on principles of community-based participatory research methods (CBPR), a community-oriented framework was applied in three studies that focused on African- Americans/Blacks (herein referred to as Blacks): The Metabolic Syndrome Outcome Study (MetSO), Tailored Approach to Sleep Health Education (TASHE), and Peer-Based Sleep Health Education and Social Support (PEERS-ED). We describe results of our application of this framework to enroll and study Blacks in these NIH-funded studies of obstructive sleep apnea (OSA). Methods: Our community-oriented framework includes strategic guidelines for effective intervention to engage communities in research and ensure cultural and linguistic appropriateness of sleep messages in behavioral interventions. Strategies included: 1) focus groups and in-depth interviews with key stakeholders; 2) establishing a community advisory board; 3) conducting Delphi surveys to identify high-priority diseases and conditions. Community barriers were identified through an iterative process using surveys and focus groups. Stakeholder groups were integral during the development, implementation and dissemination, reflecting a patient-oriented decision-making process with respect to key intervention components. Results: MetSO, TASHE, and PEERS-ED reached nearly 3, 000 Blacks at risk of OSA in New York City. Of those, 2, 000 were screened for OSA. Sleep brochures were distributed to over 10, 000 individuals. The mean age of community participants was 62±14 years; 69% were female; 43% had an annual income <$10, 000; and 37% had <HS education. The prevalence of cardio-metabolic conditions were: diabetes (60%), obesity (67%), hypertension (94%), and dyslipidemia (74%). Based on the apnea risk evaluation questionnaire (ARES), 49% were at risk for OSA and 53% reported daytime sleepiness (Epworth>10); 10% reported an insomnia diagnosis and 12% used sleep medications. Based on WatchPAT data, 24% had moderate OSA and 18%, severe OSA. Compared to blacks receiving standard sleep messages, those exposed to tailored sleep messages in our interventions were nearly 4 times as likely to adhere to OSA care. Conclusion: Community outreach may be an effective strategy in the reach and spread of sleep messages among low-income Blacks at-risk for OSA. Support (If Any): NIH (T32HL129953, K07AG052685). Dr. Williams was supported by NIH/NHLBI K23HL25939