Psychometric Properties of a Spanish-Language Version of a Short-Form FAMCARE: Applications to Caregivers of Patients With Alzheimer's Disease and Related Dementias. (November 2019)

• Record Type: Journal Article
• Authors: Teresi, Jeanne A.; Ocepek-Welikson, Katja; Ramirez, Mildred; Ornstein, Katherine A.; Bakken, Suzanne; Siu, Albert; Luchsinger, José A.
• Is Part Of: Journal of family nursing. Volume 25:Number 4(2019:Nov.)
• Page Start: 557
• Page End: 589
• Publication Date: 2019-11
• Subjects: Spanish language -- Alzheimer's disease -- palliative care -- caregivers -- item response theory -- confirmatory factor analyses -- FAMCARE -- item bank; Family nursing -- Periodicals; Nursing -- Periodicals; 610.73
• DOI: 10.1177/1074840719867345
• Languages: English
• ISSNs: 1074-8407

Abstract

Although family satisfaction is recognized as a critical indicator of quality care for persons with serious illness, Spanish-language measures are limited. The study aims were to develop a Spanish translation of the short-form Family Satisfaction With End-of-Life Care (FAMCARE), investigate its psychometric properties in Hispanic caregivers to patients with Alzheimer's disease and related dementias (ADRD; N = 317; 209 interviewed in Spanish), and add parameters to an existing item bank. Based on factor analyses, the measure was found to be essentially unidimensional. Reliabilities from a graded item response theory model were high; the average estimate was 0.93 for the total and Spanish-language subsample. Discrimination parameters were high, and the model fit adequate. This is the first study to examine the performance of the short-form FAMCARE measure among Hispanics and caregivers to patients with ADRD. The short-form measure can be recommended for Hispanics and caregivers to patients with ADRD.