"Good care" throughout the prostate cancer pathway: Perspectives of patients and health professionals. (October 2019)

• Record Type: Journal Article
• Authors: Appleton, Rebecca; Nanton, Veronica; Roscoe, Julia; Dale, Jeremy
• Is Part Of: European journal of oncology nursing. Volume 42(2019)
• Page Start: 36
• Page End: 41
• Publication Date: 2019-10
• Subjects: Primary care -- Prostatic neoplasms -- Qualitative research -- Health personnel -- Good care; ADT Androgen Deprivation Therapy -- AS Active Surveillance -- NICE National Institute for Health and Care Excellence -- NHS National Health Service -- p.d post diagnosis -- PSA Prostate Specific Antigen -- RP Radical Prostatectomy -- RT Radiotherapy; Cancer -- Nursing -- Periodicals; Cancer -- Research -- Periodicals; Oncology -- Periodicals; Oncology Nursing -- Periodicals; Neoplasms -- nursing -- Periodicals; Cancer -- Soins infirmiers -- Périodiques; Cancer -- Recherche -- Périodiques; Cancérologie -- Périodiques; Verpleegkunde; Kanker; Cancer -- Nursing; Cancer -- Research; Oncology; Electronic journals; Periodicals; Electronic journals; 616.9940231
• DOI: 10.1016/j.ejon.2019.06.011
• Languages: English
• ISSNs: 1462-3889

Abstract

Abstract: Purpose: Men in follow up for prostate cancer represent the largest proportion of patients with the illness. In the United Kingdom, primary care is increasingly involved in caring for these patients. Little is known however regarding the factors that determine men's evaluation of their care and primary healthcare professionals' perceptions of the care they provide. This study aimed to investigate patient and primary care based health professionals' perspectives of what constitutes 'good care' for men with prostate cancer, including limiting or facilitating factors. Method: Semi-structured interviews were conducted with ten patients and eight primary care based healthcare professionals and thematically analysed in collaboration with a patient representative group. Results: Good care was identified by patient participants, with aspects of communication, including information, active participation, sensitivity of approach and context being highlighted. Healthcare professionals also prioritised communication as the basis of good care and recognised the benefits of locally based services. Conclusions: Treatments in prostate and other cancers continue to improve with corresponding increases in survival. To further develop and sustain the good care that patients require to help them cope with diagnosis, treatment and long term adjustment, investment in resources, training and innovative communication systems between patients, generalist and specialist services are required. Highlights: Effective communication was viewed by both patients and professionals as vital to good care. Clinicians should do more to help men talk about sensitive topics. Professionals recognised a preference for follow up care to be based at a general practice. To provide optimum primary based care, more resources and training are needed.