Improving the disease awareness: how a communication campaign brings hidradenitis suppurativa to the light. (19th September 2019)

• Record Type: Journal Article
• Authors: Ribero, S.; Dapavo, P.; Casalegno, C.
• Other Names: Alaibac Mauro investigator.; Argenziano Giuseppe investigator.; Arpaia Nicola Giovanni investigator.; Bagnoni Giovanni investigator.; Berti Emilio investigator.; Bianchi Luca investigator.; Bianchini Daniela investigator.; Calzavara Pinton Piergiacomo investigator.; Cannavò Serafinella Patrizia investigator.; Congedo Maurizio investigator.; Corrao Salvatore investigator.; Costanzo Antonio investigator.; Cusano Francesco investigator.; Dattola Salvo investigator.; Dattoli Stefano investigator.; Deledda Salvatore investigator.; Donini Massimo investigator.; Fabbrocini Gabriella investigator.; Teresa Fierro Maria investigator.; Foti Caterina investigator.; Galluccio Antonia Gerarda investigator.; Gatti Alessandro investigator.; René Girardelli Carlo investigator.; Girolomoni Giampiero investigator.; Lemme Giuseppe investigator.; Malagoli Piergiorgio investigator.; Malara Giovanna investigator.; Mercuri Santo Raffaele investigator.; Micali Giuseppe investigator.; Montesu Maria Antonia investigator.; Offidani Annamaria investigator.; Papini Manuela investigator.; Parodi Aurora investigator.; Patrizi Annalisa investigator.; Pellacani Giovanni investigator.; Peris Ketty investigator.; Piccirillo Angelo investigator.; Pigatto Paolo investigator.; Pimpinelli Nicola investigator.; Potenza Concetta investigator.; Provenzano Eugenio investigator.; Romanelli Marco investigator.; Rongioletti Franco investigator.; Savoia Paola investigator.; Simonacci Marco investigator.; Sirna Riccardo investigator.; Stinco Giuseppe investigator.; Valenti Giancarlo investigator.; Zalaudek Iris investigator.;
• Is Part Of: Journal of the European Academy of Dermatology and Venereology. Volume 33(2019)Supplement 6
• Page Start: 7
• Page End: 9
• Publication Date: 2019-09-19
• Subjects: Dermatology -- Periodicals; Sexually transmitted diseases -- Periodicals; 616.5
• DOI: 10.1111/jdv.15828
• Languages: English
• ISSNs: 0926-9959

Abstract

Abstract: Background: Hidradenitis suppurativa is an inflammatory skin disease that presents a recurrence of painful and suppurating lesions in the apocrine gland‐bearing regions, with a strong impact on the patients' life quality. Despite its peculiar presentation, early forms are often underestimated by patients and this would inevitably result in late diagnosis and delayed therapy. Objectives: Improved communication around the disease could facilitate self‐diagnosis and a quicker response from healthcare practitioners, especially in this moment when we dispose of effective treatment against this disease. Methods: A HS awareness campaign was conducted for 2 years with the help of a media agency and a patients' association. Results: Results confirm that a better communication has a strong impact on the disease awareness. Conclusions: This paper demonstrates that the more this disease awareness is carried on, the more quick, effective and efficient the patient's management could be.