Attending Follow-up Appointments After Pediatric Traumatic Brain Injury: Caregiver-Perceived Barriers and Facilitators. Issue 2 (March 2019)

• Record Type: Journal Article
• Authors: Lever, Kimberly; Peng, Jin; Lundine, Jennifer P.; Caupp, Sarah; Wheeler, Krista K.; Sribnick, Eric A.; Xiang, Henry
• Is Part Of: Journal of head trauma rehabilitation. Volume 34:Issue 2(2019)
• Publication Date: 2019-03
• Subjects: barriers -- facilitators -- follow-up -- pediatric -- traumatic brain injury (TBI); Brain damage -- Patients -- Rehabilitation -- Periodicals; Brain damage -- Periodicals; 617.4810443
• DOI: 10.1097/HTR.0000000000000433
• Languages: English
• ISSNs: 0885-9701

Abstract

Abstract : Objective: To examine barriers and facilitators for follow-up care of children with traumatic brain injury (TBI). Setting: Urban children's hospital. Participants: Caregivers of children (aged 2-18 years) discharged from an inpatient unit with a TBI diagnosis in 2014-2015. Design: Survey of caregivers. Main Measures: Caregiver-reported barriers and facilitators to follow-up appointment attendance. Results: The sample included 159 caregivers who completed the survey. The top 3 barriers were "no need" (38.5%), "schedule conflicts" (14.1%), and "lack of resources" (10.3%). The top 5 identified facilitators were "good hospital experience" (68.6%), "need" (37.8%), "sufficient resources" (35.8%), "well-coordinated appointments" (31.1%), and "provision of counseling and support" (27.6%). Caregivers with higher income were more likely to report "no need" as a barrier; females were less likely to do so. Nonwhite caregivers and those without private insurance were more likely to report "lack of resources" as a barrier. Females were more likely to report "good hospital experience" and "provision of counseling and support" as a facilitator. Nonwhite caregivers were more likely to report "need" but less likely to report "sufficient resources" as facilitators. Conclusions: Care coordination, assistance with resources, and improvements in communication and the hospital experience are ways that adherence might be enhanced. Abstract : Supplemental Digital Content is Available in the Text.