Beyond self-tracking: Exploring and unpacking four emerging labels of patient data work. (September 2019)

• Record Type: Journal Article
• Authors: Piras, Enrico Maria
• Other Names: Bossen Claus guest-editor.; Pine Kathleen H guest-editor.; Cabitza Federico guest-editor.; Ellingsen Gunnar guest-editor.; Piras Enrico Maria guest-editor.
• Is Part Of: Health informatics journal. Volume 25:Number 3(2019)
• Page Start: 598
• Page End: 607
• Publication Date: 2019-09
• Subjects: data-work -- observations of daily living -- patient-generated health data -- personal health information management -- quantified-self -- self-tracking; Medical informatics -- Periodicals; 610.285
• DOI: 10.1177/1460458219833121
• Languages: English
• ISSNs: 1460-4582

Abstract

Despite the growing attention of researchers, healthcare managers and policy makers, data gathering and information management practices are largely untheorized areas. In this work are presented and discussed some early-stage conceptualizations: patient-generated health data, observations of daily living, quantified self and personal health information management. As I shall try to demonstrate, these labels are not neutral; rather, they underpin quite different perspectives with respect to health, patient–doctor relationship and the status of data.