Improving service delivery for neuromuscular diseases: a survey of consumers at a tertiary Australian hospital. Issue 12 (5th December 2018)

• Record Type: Journal Article
• Authors: Anderson, James; Tay, George; Denby, George; Robinson, Jan; Douglas, James; Robinson, Peter; Curtin, Deanne
• Is Part Of: Internal medicine journal. Volume 48:Issue 12(2018)
• Page Start: 1520
• Page End: 1524
• Publication Date: 2018-12-05
• Subjects: neuromuscular -- service delivery -- multidisciplinary -- Duchenne -- muscular dystrophy; Medicine -- Periodicals; 616
• DOI: 10.1111/imj.14123
• Languages: English
• ISSNs: 1444-0903

Abstract

Abstract: Patients with neuromuscular diseases benefit from coordinated multidisciplinary care to achieve best outcomes. The integration of multi‐specialty healthcare delivered in a single clinic can be challenging for service providers due to cost and resource limitation. Our cross‐sectional survey of 53 adult patients with neuromuscular disease across Queensland revealed only 27% support the introduction of an integrated multidisciplinary clinic. The most cited reason for opposition to a multidisciplinary clinic was a perceived loss of contact with one's usual doctor. Modifying service delivery in neuromuscular disease is a complex undertaking and will need input from numerous stakeholders.